I last posted about my son’s biomedical treatment last October, when I was fed up with the DAN! doctor we were trying to see and decided to cancel our follow-up appointment (that had been rescheduled more than once due to testing delays).
Well, since then, we were able to go to the outreach clinic held by Pfeiffer Treatment Center, which is a non-profit center specializing in treating biochemical imbalances. They are located in Warrenville, IL, but hold an outreach clinic twice a year in Annapolis, MD.
I took Michael down there on March 9th, the day after his first chair-throwing incident and the day before his 8th birthday, and I was very impressed with the whole operation. They basically take over a floor of a hotel and you see the nurse and the doctor, who is a DAN! doctor by the way, and also give a urine sample there. The blood draw was done at a LabCorp literally two blocks away.
The doctor told us that he suspected pyroluria based on Michael’s symptoms, but that we would know more once the testing was done. He gave me a starter supplement and a short list of other supplements to use until we heard back from them. He also had us do an OAT (organic acid test) to check for yeast or bacteria and get a X-ray to check for fecal retention.
Here are the supplements we started/continued after the first visit:
- Pfeiffer starter supplement (includes Vitamin C, Vitamin E, B6, Magnesium and Zinc)
- Evening Primrose Oil (we did transdermal, this oil is an Omega 6 and recommended with pyroluria)
- GABA for calming (we didn’t really see any effect from this one)
- Continue the Zeolite
- Continue probiotics once the OAT sample collected
- Continue melatonin for going to sleep
- We added L-Carnitine after the Xray showed mild to moderate fecal retention as it is supposed to help with motility
I started very slowly with the supplements, just juice at first and then mixing in a little bit at a time until I got to the dosage. He has been surprisingly compliant, for which I am very thankful. Hopefully that will continue as we start his customized plan. I’ll post more about his results later.
